Hello friends and family. We just wanted to give you all an update on a little bump in the road with Tristyn’s recovery. Don’t worry, it is NOT cancer! Tristyn has been diagnosed with chronic graft vs host disease (GVH). This is a condition where her new immune system starts attacking her own body. In this case, she has GVH in her arms and her mouth. She has sores in her mouth and the muscles in her arms are very tight and sore. The doctors say that if left untreated, she could lose mobility in her arms. The doctors want to put her on a powerful steroid drug known as prednisone to treat this. Some of the side affects of this drug will be extreme fatigue, major mood swings, and significant weight gain. They expect her to be on this drug for 6 months.
We are trying to stay positive, though it can be difficult at times. We know that things could be worse, but we are just tired of Tristyn having to go through so much pain and suffering. The poor girl deserves a break! Our hearts go out to all those who are undergoing similar treatments or who are battling cancer at this time. It is not easy, but if we stay close to those we love and try to support one another, we can find joy in the journey.
We would like to say thank you to everyone for all the love and support you have shown us over the years. We ask that you please include Tristyn in your prayers one more time.